12. Miles Davis and the Mexicans

My weekend began with a text to Saint Luke; ‘I’m 79% sure I’m having a heart attack’. I wasn’t, a chainsaw had just taken residence in my chest. I crawled into bed and was surprised when a family of Mexican neighbours arrived to wish me well. I was grateful that they’d come, all eight of them, but as they sat awkwardly on my bed I felt terribly self-conscious and the small talk was dwindling. I shouted to Saint Luke for back up, concerned that no one had offered these poor Mexicans a drink! But he wasn’t there and neither were the Mexicans, so I fell back into a fevered sleep.

Saint Luke mused on the ‘best-laid plans’ for our weekend that were promptly cast aside, whilst I wrestled with the aches in my body, the chainsaw in my chest and the Mexicans on my bed. My dad gently suggested, ‘perhaps you’ve overdone it this week?’ If overdoing it means racking up copious lines of kale and raving (reading) until 8pm, then YES I’d overdone it. ¡Ándale! ¡Ándale! ¡Arriba! ¡Arriba! Somebody stop me!

And so it came to pass that I should learn another solemn lesson; I simply can’t make plans, no matter how modest, not even best-laid ones. I spent Saturday sulking in bed, wondering if there’s anything more pathetic than crying over a lost trip to the supermarket. I used to be fun. I used to be a contender! The most frustrating thing is not being able to predict when I’ll be visited by Lucian Lupus, or Mexicans, because there seems to be no warning, not even a courtesy call. How rude!*

Last week I was thrilled to have accomplished five days of work with relatively manageable pain, as long as I kept my inner tempo tuned to soft jazz. This is no easy feat for a girl who opposes the sedentary beat she has to keep**. You see, because I’m upbeat and excitable by nature, I often forget myself at work when we win a new job, or someone tells a hilarious joke or reveals a most wonderful sandwich, only for my body to be thrown back down by a chainsaw. My natural and forced rhythms are constantly at odds; it’s like an experimental jazz battle in there (with brief interludes from the Texas Chainsaw Massacre.) So perhaps I should have predicted the fall out at the end of last week, which left me surrounded by Mexicans and in a lot of pain, just like Miles Davis***. And maybe my dad was right (he tends to be) and I did too much. And maybe I brought it on myself. Damn that natural funky rhythm of mine!

But where does that leave me? I don’t want to slow down the up-tempo beat that makes me, me. I don’t want to walk instead of run, smirk instead of smile, titter instead of laugh with my head thrown back. I don’t want to dampen my spark any more than I’ve already had to, because I’m in danger of fizzling out entirely. I can barely recognise myself beneath all the cotton wool, and I’m finding it hard to breath.

Before my laboured beat makes me feel downbeat, I must remember that this departure from myself is Only Temporary. Lupus Troopers, when the music changes, so must the dance my friends. Hang up your sequined trousers, but don’t abandon the idea of ever wearing them again. Leave your best-laid plans at the door and collect them on the way out of this mess. Sit back, relax, turn your electric blanket up to 11, and tune in to soft jazz. Lay down that boogie and play that funky music, until your pills kick in. (And please don’t stress if you’re unexpectedly visited by Mexicans; perhaps they’re listening to the music too).

***

* I’m not suggesting all Mexicans are rude – just hallucinated ones.    

 ** This sentence is also a poem. You’re welcome.        

*** Replace ‘Mexicans’ with ‘New Yorkers’ and ‘pain’ with ‘trumpets’. Now that’s Miles Davis.

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In days of yore, when the sparkly trousers were in action.

9. ‘Tis the season for mince pies and morphine

‘Tis the season to be jolly (falalalala, lalalala) even when you’re throwing up on Christmas morning, because having a shower was too much fun for one day (falalalala, lalalala.) ‘Tis not the season to pass on Christmas pudding, so I’ve put my rule book to one side and enjoyed a heady mix of mince pies, morphine and mulled wine (falalalala, lalalalaaaaaaaaaaggghhh!)

And now I’m back in bed, my chest throbbing in distain for the frivolity, I’m wondering if it was all worth it? Of COURSE it was, every last crumb and dance with my niece, every last dunk in brandy butter and roar of laughter. Every crisp, every game, every sip, every hour, every single moment was worth it. Which leads me to ponder (with my head at a jaunty angle and my index finger to my lip), has it all been worth it? Have the last five months offered me anything more than a restored love of almond milk?

Now, I would never wish for Lupus (like I wish for Isabel Marant boots), that would be silly and a little sadistic, but I am incredibly grateful for the refreshed view on life that Lupus has bought me. Lupus is partly responsible for placing my life in a golden frame and saying to me, ‘look at this life you’ve got, you massive lush! Look closer! I know it may be a bit wonky, it may not have turned out exactly as your 15 year old self thought it would, but it’s f-ing bloody brilliant and you are SO lucky.’

Over the last five months, I’ve received enough flowers to host the Chelsea Flower Show and Get Well Cards to fill a forest (if we could magically reverse the paper-making process… sorry trees.) My friends and family have a canny knack of appearing just as I’m close to feeling sorry for myself, with grapes and cakes and the wisest of words; with eye cream and candles, foot rubs and head strokes; with DVDs and magazines and bouquets of fruit (no shit, click on this link, they’re amazing!) They’ve come with herbal teas, juice recipes and an abundance of PMA. They’ve emptied the dishwasher, they’ve made me soup and they’ve made me laugh and laugh (until I’ve had to tell them to stop being so goddamn funny because it hurts.) Blimey, I am SO lucky.

I’ve been reunited with old school friends and boyfriends who have appeared from nowhere to wish me well. Although no longer in uniform or in the band, and despite the years that have passed and the nonsense life has also thrown at them, they’ve hardly changed at all. What an influence on my life our past together has been, and what inspirations they live to be now. I am SO lucky to have experienced them and to be able to rediscover them now.

I’ve had endless support from my bosses and colleagues at Coffee & TV. Working with such a passionate, talented and hilarious crew is the very best tonic (and if it could be bottled we’d all be millionaires! So I’m working on it…) I’m SO lucky to be able to spend my days with such an awesome and energizing bunch.

If ever you need your significant other to prove his / her love for you, remind him every day how much you’re hurting and cannot possibly hoover. Tell him that you can’t go out despite the fact it’s his friend’s engagement party / birthday party / Halloween party / new-born’s christening. Ask for your hot-water bottle to be refilled, despite the fact he fell asleep half an hour ago. Tell him you want the moon and ask him to throw a lasso around it and pull it down. All hurdles are equally demanding and worthy of proving his love. Thankfully, my boy has successfully completed his endurance test; indeed he’s endured an awful lot, and I am SO lucky.

And although it’s surprising to find yourself being tucked into bed by your mum / dad / sister / brother, at the age of 34, (and certainly not what my 15 year old self had foreseen) I am SO grateful. What a privilege it’s been to spend this uninterrupted time with my family – to be cocooned in their unconditional love, with tea and toast on tap. Gosh, aren’t I lucky.

Oooopsies, I appear to have written my Lupus Awards acceptance speech. I’ll stop here (else I’ll have nothing to say in my actual Lupus Awards acceptance speech, a glamorous red-carpet affair that I’m certain my Super Doc is planning). There’s an awful lot more I have to be thankful for, but I’m precariously standing on the edge of the smug zone. I appreciate that not everyone is lucky enough to be surrounded by such incredible people, but I do hope that the frame around your world highlights all that’s good, funny, surprising and wonderful… I promise it’s all there, if you look hard enough.

Numerous people have asked me lately how I remain so chipper; I hope this post shows that it would be very hard not to be! THANK YOU to everyone who has made it so. Despite the hospital visits, the tests, the tears, the aches, the pain and puke, I’m really rather lucky. Perhaps it’s the morphine talking? Or perhaps I just feel really rather jolly – ‘tis the season after all (falalalala, lalalala.) SO, bring it on 2016, I’m ready for you and I’ve got my army with me.

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London Bridge Hospital, feeling festive

1. Welcome to ‘Lush to Lupus’, this is just the beginning…

I work in the best area of London when the summer sun begins to shine. In a celebratory mood, Soho is awash with Aperol Spritz as long lunches turn into long cocktails until long after the sun goes down. Thankfully I work in an industry populated by creative mischief-makers and my incredible job has allowed me the opportunity to court fun like 007 courts danger. So when a peculiar chest pain crept up on me this August, I was more concerned about the opening of the new Soho House, rather than my health. In fact, my heath was so far down my list of priorities and lost within my thoughts, I could barely see it; I imagine it looked a bit like this inside my head… ‘I wonder how much it would cost to build a vineyard in Puglia? Do you build vineyards or grow them? I’d love a puppy. How long does it take to grow the vines and is £2082 savings enough to buy them? My chest hurts, I’ll just Google ‘vineyards for sale’. There’s a Zara sale! I know nothing about vineyards so I should probably quash the dream of owning one. I want to launch a new short film festival. I’d just drink all the wine before I have the chance to sell it so a vineyard is a terrible idea. How about a bed and breakfast in Cornwall?’

As a healthy 30 year old (ok ok, 34 year old) I have garnered the nickname Leonie Lush for my crafty ability to find the fun in any occasion. ‘We just won a new client, let’s go for a DRINK! I LOVE Taylor Swift’s new song, let’s find somewhere to DANCE to it! It’s TUESDAY and I’ve got a voucher for PIZZA EXPRESS! It’s TUESDAY!’ Etc. So when that niggling chest pain kept interrupting my fun, I reluctantly decided to go to the doctors. But because I’m normally a picture of health (minus the hangovers and subsequent Domino’s Pizzas), I didn’t have a doctor, so I had to borrow my parents’. I popped on the train to Guildford and was greeted by my dad who was waiting with the anticipation of a Labrador whose owners had tied him to a lamppost and gone travelling round Europe. Dad wagged his (invisible) tail and we merrily drove to the doctor to get some antibiotics for my ‘chest infection.’ In the car he warned me that ‘Doctor Englesfield doesn’t like it when you tell him what’s wrong with you, you have to let him think he thought of it first.

So with that in mind, I told the ‘know-it-all’ doctor that my chest hurt, a lot. At first it just hurt after the gym, then it hurt when I ran for a bus, then it hurt when I walked up the stairs, then it hurt when I walked, then it just hurt all.the.time. and it had been getting progressively worse over the past three weeks. The doc said it wasn’t a chest infection after all (fancy that!) He prescribed me some non steroidal anti-inflammatories for Costochondritis (which is inflammation of the cartilage between the ribs, possibly caused by a virus.) I happily picked up my prescription, and my dad drove me home where my mum had just popped a bottle of Prosecco in celebration of my return. Cheers!

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Three glasses… one for Lizzie, Lenny and Leonie Lush.