Hello, I’m Leonie! Thank you for reading my blog, you’re clearly a wonderful person. I’ve started this blog because I’ve recently found out I’ve got Systemic Lupus. The Wiki description of SLE features a pencil drawing of an ageing black lady (because it was written before cameras were invented?!) It also says Lupus is the Latin word for Wolf, it’s more common in African-American and Caribbean women, and that typically SLE comes with a butterfly shaped rash across the face. WhatisgoingonWhataretheyonabout? I don’t have a rash? Why are they talking about wolves? I’m not Caribbean, I’m not that exotic, I’m GINGER.
So because there’s absolutely no mention of 34 year old ginger British girls with Lupus, I Googled ‘what the f*ck is Lupus?’ and more importantly ‘why the f*ck have I got it and what do I do now?!’ I was directed to numerous excellent websites and blogs that made SLE feel much more comprehendible, which is why I’ve spent the last three months buried in the internet.
And I want to join the party! It’s been a bizarre, often tearful, and regularly hilarious journey and I think I’ve got ‘Lovely Lupus’ insights I can share.
In short, this is what I’ve learned about Systemic Lupus Erythematosus.
- It’s an autoimmune connective tissue disease, in which the body’s immune system mistakenly attacks healthy tissue.
- SLE most often harms the heart, joints, skin, lungs, blood vessels, liver, kidney and nervous system.
- The course of the disease is unpredictable, with periods of illness called flare-ups, alternating with remissions.
- There is no cure for SLE, but it’s treated with medication to keep symptoms under control.
- The disease occurs nine times more often in women than men.
- It sounds like my boyfriend’s name ‘Luke’, so I can blame everything that’s wrong in the world on either one of them.
- Most people, like me, haven’t heard of it before.
I apologise if you find this blog terribly self indulgent, my grammar appalling and my chat inane – go and find another blog about fishing or taxidermy, there is no place for you here my friend. But if you’re interested in Lupus and Top Shop then stick around! Welcome, let’s have some fun.