About

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Hello, I’m Leonie! Thank you for reading my blog, you’re clearly a wonderful person. I’ve started this blog because I’ve recently found out I’ve got Systemic Lupus. The Wiki description of SLE features a pencil drawing of an ageing black lady (because it was written before cameras were invented?!) It also says Lupus is the Latin word for Wolf, it’s more common in African-American and Caribbean women, and that typically SLE comes with a butterfly shaped rash across the face. WhatisgoingonWhataretheyonabout? I don’t have a rash? Why are they talking about wolves? I’m not Caribbean, I’m not that exotic, I’m GINGER.

So because there’s absolutely no mention of 34 year old ginger British girls with Lupus, I Googled ‘what the f*ck is Lupus?’ and more importantly ‘why the f*ck have I got it and what do I do now?!’ I was directed to numerous excellent websites and blogs that made SLE feel much more comprehendible, which is why I’ve spent the last three months buried in the internet.

And I want to join the party! It’s been a bizarre, often tearful, and regularly hilarious journey and I think I’ve got ‘Lovely Lupus’ insights I can share.

In short, this is what I’ve learned about Systemic Lupus Erythematosus.

  • It’s an autoimmune connective tissue disease, in which the body’s immune system mistakenly attacks healthy tissue.
  • SLE most often harms the heart, joints, skin, lungs, blood vessels, liver, kidney and nervous system.
  • The course of the disease is unpredictable, with periods of illness called flare-ups, alternating with remissions.
  • There is no cure for SLE, but it’s treated with medication to keep symptoms under control.
  • The disease occurs nine times more often in women than men.
  • It sounds like my boyfriend’s name ‘Luke’, so I can blame everything that’s wrong in the world on either one of them.
  • Most people, like me, haven’t heard of it before.

I apologise if you find this blog terribly self indulgent, my grammar appalling and my chat inane – go and find another blog about fishing or taxidermy, there is no place for you here my friend. But if you’re interested in Lupus and Top Shop then stick around! Welcome, let’s have some fun.

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2 thoughts on “About

  1. Thank you so much for writing about your lupus. I am recently diagnosed (6 months ago) and am still struggling mightily. I came across your blog and something happened that has not happened in what feels like forever….I laughed. I honest-to-god, real-belly-full, LAUGHED. I had no idea that it was possible to face lupus with such humor, such witty threading of both the pain and the ridiculousness that this disease is. I am bowled over and in complete awe at how you are able to not only view lupus, but WRITE about it as well. You have a gift with words – and with perspective. Truly, you do. It had not occurred to me, not even a little, tiny bit that there could be brighter moments of humor and hope within this disease.

    At least, not until I read your blog. Thank you. Thank you so much.

    (And I totally get the red lipstick thing. Mine is cat’s eye eye-liner. I lather that shit on even if I’m just going to be sleeping for the next 12 hours.)

    Like

    • Teresa I’m totally overwhelmed by your wonderful words. Thank you! Thank you so much for reading the blog and for taking time to write to me. We must always find a way to laugh at what life with Lupus may throw at us. I’m sorry to hear you’ve been struggling… remember this is just one chapter of many and YOU are stronger than IT! We can do this!! Now go and get that eyeliner on. XxX

      Liked by 1 person

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